We went for our consult yesterday with Dr. Rowley, chief of the MM group at Hackensack. In the process of waiting for him they took an ocean of blood, 12 vials. He went over all of my files with us and outlined the process for us. We'll have to make a decision about further treatment - Allogeneic transplant or not after we get the results from the Autologous transplant. He favors a double (tandem) Auto transplant. In the meantime all of my brothers and sisters are doing an HLA swab test kit to see who is the best match for me or if I have multiple matches within the family.
I had surgery this morning to put a port in my chest below my collarbone. It's pretty sore right now but not terrible so I'll grin and bear it with a little help from my friend - Per Ca Set. Over the next two weeks I'll be losing my hair so I went and got all my hair cut off. I thought that that would be a little less sloppy than losing tufts of hair around Barbara's condo. Tomorrow I get a major all day infusion of Chemo and come home to Barbara's to rest. I'll get Neupogen injections sometime late next week.
Hey Rob - so I went and had a whole bunch of my hair cut off today too - just for you!!! (but not the Demi Moore kinda cut - :)
ReplyDeleteI think of you every day, I bought a St. Peregrine pocket coin, which I keep at my desk at work so I can see it all day long and say the prayer for you from time to time. You are always with me!! Love ya.
Forgot to tell ya - got my swab kit via Fed Ex today. Marian, Mary and Cathy are coming up to Vermont this weekend. We going to have a "swab party" - Cathy gets to do the honors. Jennifer is also coming up - maybe she can help. Then we are going to a concert called 1964-The Tribute - all about the Beatles - will be thinking of ya as we are singing "I Want To Hold Your Hand" - :)
ReplyDeleteMy Dear Uncle Robert,
ReplyDeleteYou and Aunt Joanie are in my thoughts as you go through this difficult time. I know you will come out on top when its all said and done. I am here if you guys need anything.. please don't hesitate to ask. Thinking about you always and stay strong.